Finding the Answers to Living with Cerebral Palsy
Part of the reason that I wanted to start this site is because I want to learn and help other people in finding the answers to living with cerebral palsy.
William Cupit
I FOUND YOUR WEBSITE THRU FACEBOOK AND I’M THE 54 Y/O MALE COMMENTING ABOUT JOINT REPLACEMENT. I WORKED 21 YEARS IN THE REHABILITATION FIELD BUT HAVE BECONE VERY DISCOURAGED ABOUT THE LACK OF INFORMATION OUT THERE FOR US RELATED TO THE AGING PROCESS. I FIND VERY FEW DOC’S WHO KNOW ABOUT, MUCH LESS TAKE AN INTEREST IN, TREATING FOLKS WITH CP. IT WOULD BE GREAT IF THERE WERE SOME WAY WE COULD SHARE OUR STORIES WITH EACH OTHERS , COMPARE NOTES, AND BE A SUPPORT TO EACH OTHER. I PERSONALLY DON’T KNOW HOW TO BEGIN TO DEVELOP THIS KIND OF WEBSITE BUT HOPEFULLY SOMEONE DOES. I’VE FOUND ONLY ONE CP SUPPORT GROUP ONLINE WHICH IS DAILY STRENGHT BUT IT’S VERY LIMITED AS FAR AS PARTICIPANTS ARE CONCERNED. I’VE ALSO FOUND THE CP GROUP BUT I HAVE NOT FOUND ANY KIND OF SUPPORT GROUP ON THIS WEBSITE.
Personally, I have had the same problem, as far as finding a support group or answers to the many questions regarding cerebral palsy and aging. I want to really encourage others to contribute to this site. Let me post your stories, add your comments, and if you have already undergone something like a hip replacement, share your experiences with William and the rest of us.
William went on to say:
. My specific complaint is the lack of Orthopedic Surgeons and Neurologists who have extensive experience in treating folks with CP. I never thought about this much until about 7 years ago after developing arthiritis and requiring a hip replacement. I have been ambulatory all my life and would like to remain so for a while longer. There must be others out there like myself and those are the ones I would like to network with. I would also like to see an affordable, annual, centrally located conference where those that can attend will and some of these issues that affect us all can be addressed with some realistic answers by competent professionals. I really don’t know for sure what UCP does but one would think they would be the catalyst behind this effort. I never dealt with them as a child but as a professional working in the Voc Rehab field, I saw very little services offered to adults other than daycare for the adults.
Help us find you. Find us. We want to get together just to talk, support each other, develop lasting friendships, and share the good times and bad of living with cerebral palsy.
If you have any questions or comments, please contact me. If you have something that I can share with others, let me know. If not, we can just talk. Facebook is great; but, we need a place to really talk.
February 12th, 2010 at 9:58 pm
Hi,I’m taking some time to write you a comment. I hope you don’t mind I’ve bookmarked your page, your post is genuinely helpful for me. Sophia x
February 13th, 2010 at 12:43 am
Sophia,
I am so glad that you find it helpful, and I am honored that you have bookmarked it! Thank you! I hope that you will keep contributing comments and maybe even give me some ideas of what you want me to write about. Also, if you or someone you love has CP, I would be glad to post your story as a blog entry. Even though CP is a common disability, we all have different experiences that might encourage someone else.
Thanks again,
Tina
February 22nd, 2010 at 7:43 pm
Hi. I needed to let you know that some elements of your website are difficult to scan for me, as I am color blind. I have problems with deuteranopia, however there are more forms of color blindness which will also experience difficulties. I can read the largest part of the web site OK, and the areas I have difficulties with I can read by employing a custom browser. All the same, it’d be cool if you would consider us color-blind surfers whilst doing the next site redesign. Cheers.
February 22nd, 2010 at 10:16 pm
Colin,
I had to look up the definition of deuteranopia. My site is neither red nor green. It is mostly orange. So, I am not sure what colors would work best for you. Are you talking about the print itself, or the colors of the headings. How can I change the site, so you can read it? Let me know, and I will see if I can change it to accommodate your needs.
Thanks for letting me know,
Tina