Two for One Deal

Today, it was time to do something constructive. It was time to make bread. When, I moved into the house, some ladies from my church gave us a bread maker. They are wonderful, if you don’t want to deal with the mess. But, mine bit the dust. So, I made whole wheat bread from scratch – the old fashioned way.

I don’t know where I found the recipe, but it is sooooooooooo easy. It is only 4 ingredients – five, if you want whole wheat.

1 1/4 cup warm water (not too hot, or it will kill the yeast)
2 tbsp yeast
1/2 cup sugar
3 1/2 cups flour (half white and half wheat, if you want whole wheat bread)

Mix water, sugar and yeast. (If you are not sure if your yeast is good, leave it sit for 5-10 minutes. You should see the mixture kinda bubbling)

A recipe with say three and a half cups of flour. But, I have done it enough times, I don’t even have to measure anymore. Don’t add all of your flour at once. Add about 1/3 at a time. When it is still sticky, but getting hard to stir, it is time for . . .

The Two for One Deal

It is time to get some arm and hand exercise!

Dust your hands with flour, or the dough will really cling to your fingers. Put some flour on top of the dough and dive in – so to speak. Squeeze the dough, turning it and flipping it, kneading every time.

You do not want to put two much flour in your dough, or it will be too heavy. You will know it is ready to raise, when the dough is still stretchy, but not too sticky. Cover it with a dish cloth and let it raise in a warm place for about an hour. (I usually barely turn the oven on, just so it is warm, not toasty. Then, I turn it off, when I put the dough in to raise.

After an hour, knead the dough again. It will probably stick to the sides of the bowl, so you will need to dust it, and your hands with more flour. Don’t worry about getting messy. Anything that sticks to your hands will wash off.

After you have kneaded it again, roll it around in your hands until it is about the size of a small loaf of bread. Plop it in a bread pan and let it raise for another hour.

Make your House Smell GOOD!

Take the dough out of the oven and set it aside. Heat the oven to 350. Put the dough back in, and bake for about 25 minutes. Ovens vary, so I usually check a couple minutes early. When the top is golden brown, take it out of the oven.

To cut the bread, I use an electric knife and a bread slicing guide. Then, it isn’t hard to cut nice pieces, even when it is just out of the oven. If you don’t want to use an electric knife, you need to get a bread knife with a serrated edge. It will be harder to cut when warm. The slices will still taste good. But, the slices might not maintain their shape.

Two for One

Making homemade bread is a great way to exercise your hands, even if you are living with cerebral palsy, and have something yummy to show for your efforts.

Many bread recipes want you to add milk, honey, oil, etc. I don’t know if I found this recipe because I didn’t have the other ingredients, or because I like recipes with 5 ingredients or less. Either way, it is yummy!

But, don’t worry if your first loaf doesn’t turn out spectacular. If you know me, you KNOW I don’t like to cook. But, I have made this bread often enough that I know when the dough feels right, and I don’t ever cook it quite as long as most recipes say, otherwise the crust is too done.

Also, if you double the recipe, you can split the dough in half and roll it out for yummy cinnamon rolls. I made a loaf of bread and a pan of rolls on Tuesday. Thanks to my growing son, they were gone on Wednesday. Today, I made two loaves of bread. We will see if it lasts beyond tomorrow.

living with Cerebral Palsy     2 Comments »

600 and Counting

Yesterday, I looked at the counter that checks how many hits my website has in the last 24 hours. I was shocked to discover that it was 600 and counting! Thank you!

When I started this blog two years ago, I never really imagined the potential interest. I never really thought it would take off, let alone have readers around the globe!

I started it as my means of having and offering a support group. I was hoping to find at least a few adults that were also having trouble finding people that were aging with CP and needed someone to understand the increasing challenges.

I never thought I would have young readers, as well as adults with CP and family members.

I Try

I do my best to be as open and honest about my personal experiences and my limited knowledge as possible. Sometimes, I even tackle subjects that aren’t usually discussed over dinner, or even with friends. Some things can be too embarrassing to admit.

I do my best to keep the post positive, while at the same time admitting that there are just some days that I would like to forget or do over.

Success

I am happy to say that the site has exceeded my expectations. I have individuals that are writing me personally, asking to guest post, and asking me to guest post. I am still trying to catch up on my correspondence. Sorry. (You know who you are.)

My aunt, who has known me and been around me for 52 years, has even thanked me for educating her. Here I thought she knew most, if not all of my struggles.

I have had people laugh with me, and probably some who would have gladly cried with me over some of the experiences. Even my doctor has mentioned that she would like to be a bug on the wall at times. We laugh together at some of the pickles I get myself into. (She is glad to have a patient that gives her permission to laugh.)

This website has been cathartic for me. As most of you know, I really tried hard to become a teacher. It wasn’t so much going to be a job to me, as it was going to be a chance to use my life to make a difference in someone else’s. Although not quite the same, and definitely not what I planned, I am starting to understand that this site does make a difference to some – at least in a small way.

To sum it all up, I want to THANK YOU for reading my blog. I also want to offer my friendship and understanding, if you just need a little bit of support and encouragement.

Thanks again, and may you find that your life is a blessing as you go about Living with Cerebral Palsy, or loving someone who does.

living with Cerebral Palsy     3 Comments »

A Family Perspective

YouTube is full of moving stories about families living with cerebral palsy. Anyone that thinks it is not a family disability is mistaken. It affects everyone in the house. Yet, that is not necessarily a bad thing.

The following video takes 4-5 minutes to watch; but, I think it is good to see the family as a whole. If you are the one with CP, I hope your family worked together and that you appreciate what they tried to do for you -even if they didn’t always know what that was.

living with Cerebral Palsy     1 Comment »

Plan B

I have seen advertisements on television about having a plan of escape, and a place to meet, if your family is caught in a house fire. But, what do you do in the event you are a disabled parent and one of your children becomes seriously ill?

If you have mild CP, maybe you can pick up your child and just go. But, what if you require crutches, a walker, or even a wheelchair? Do you have a plan to get your child help quickly, if an emergency arises?

When my son was 3, he had a fevoral seizure. I had never seen someone have one, let alone my baby. Even though I was on crutches, I can’t believe how fast I got to him. I don’t even really remember doing so. I just knew I had to get him on his side, until the seizure had run its course. But, I also knew I couldn’t just pick him up and take him to the doctor.

Fortunately . . .

My mother lived close, so I called her – knowing she could get him to the hospital. While her husband was coming to the house, she called 911. Soon, I had a houseful of paramedics, police officers, and ambulance drivers. It was organized chaos! Fortunately, all my son remembers is thinking it was great that the nurses were giving him Popsicles.

Yesterday . . .

My son went off to school and was looking forward to some activities expected in a couple of his classes. After the bus came, I went back to bed. I hadn’t slept well the night before, and I needed a couple extra hours. All was right with the world.

Soon after I dropped off the school nurse phoned. I needed to come and take my son to the doctor, because he had passed out in English class. I wasn’t even dressed. As you may have guessed, if your spastic CP is anything like mine, getting dressed while stressed is very difficult.

Thankfully, he was resting comfortably in the nurse’s office, while I called the doctor and got ready to pick him up. I didn’t even stop to load my manual wheelchair, as I figured my son would need the front passenger seat. I could borrow the chair at the doctor’s office.

Other than making my heart beat a little faster than normal, I am pleased to say that it was no great emergency. The doctor thinks it was just because he was coming down with a virus. He is fine. But, what would/should I do in an emergency. If I can’t get my child the care needed, do I have a plan B?

In fact, I have a plan B and a plan C, if needed. I am grateful to have my mother close and still able to help out. If the matter was urgent, she can still be quick about it. But, I also have very good friends, or the ambulance to call, if a serious situation arises.

As disabled parents, I believe it is imperative to have a plan B, or even C, if our child has an emergency. Counting on figuring out what to do if the time comes is not wise. A plan should already be devised, in case thinking clearly is difficult under extreme circumstances.

Any would-be-parent should have a plan for emergencies. But, especially if you are living with cerebral palsy, it is important to have a plan B, just in case.

living with Cerebral Palsy     2 Comments »

A Dedicated Life

These last few days, I have pretty much been grounded with one of my all-to-frequent bladder infections. The side effects of the antibiotic are almost as unpleasant as the infection itself. So, I pretty much stayed in bed.

However, it did get me thinking about one of the gentlemen I have had the privilege of corresponding with, since I started this blog almost 2 years ago. Phillip Stephens is probably the first person I have met that was aging with CP. I found his story most impressive.

The reason Phil came to mind was the fact that he too suffered from frequent bladder infections. I hadn’t heard from him in a while, so I thought I would look him up. Unfortunately, his web site has been taken down, so I did some further digging. I am sorry to report that I found his obituary:

Philip Stephens, age 72, a long term resident of Fresno and one of the founders of the independent living program at California State University, Fresno died quietly in his sleep on Sunday morning, September 25,2011. His death at the Hinds Hospice marked the end of a long life of service to the community. While burdened with significant physical disabilities from birth, he managed to live fully and to give generously to programs to benefit students with disabilities and the Fresno community generally. Born in Akron Ohio and raised in Pennsylvania, Phil moved to California in 1962, living in Hanford for 11 years with his family before moving to Fresno in 1973. He received a BA degree from the University of the Pacific in 1975 and a Masters degree in economics from CSUF in 1977. During his student days at CSUF, Phil, along with his long-time friend, Weldon Percy, became the driving force in improving opportunities for disabled students at the university. His work in the Disabled Student Office, for which he declined any compensation, lasted for more than 20 years. Phil was a constant presence for many decades at the CSUF and created a large cadre of friends and coworkers. His infectious smile and his commitment to helping others defined his character and his life. He founded the ‘Percy Prize’ in 2005 as an annual scholarship to honor a successful disabled student at the university. He was also active in the University Presbyterian Church and the St. Paul Newman Center. Phil is survived by his brothers, Michael Stephens of Arlington, Virginia and Melville Stephens of London, England. A Memorial Service will be held at St. Paul Newman Center, 1572 E. Barstow Ave. in Fresno on Sunday, November 6, 2011, at 2:00 p.m. The family asks that contributions in lieu of flowers be made to the Hinds Hospice, 1616 West Shaw Ave., Fresno, Ca. 93711.

Published in the Fresno Bee on October 2, 2011

Read more: http://www.legacy.com/obituaries/fresnobee/obituary.aspx?n=philip-stephens&pid=153890257#ixzz1b2vVYl8V

Phillip Stephens led a dedicated life.

living with Cerebral Palsy     No Comments »